Terms of reference: Written Evidence

The HIV Commission is putting together a national call for written evidence.

Through this call, the HIV Commission will gather evidence to inform a set of recommendations to end new HIV transmissions and HIV-attributed deaths in England by 2030. The commission aims to publish its recommendations by Spring 2020. 

The HIV Commission is aiming to further explore the key themes described below in detail. The commission welcomes your views on these themes and /or additional topics you consider of importance. 

Please note themes are not listed in any particular order.  

Theme 1: Understanding trends, trajectories and opportunities to end the HIV epidemic

  • Trends: Overview of HIV trends, drivers and the future 
  • Risk: Who is at a higher risk for HIV acquisition, including intersectionality. 
  • Elimination: Getting to zero HIV transmissions and deaths: definitions and opportunities
  • Late HIV diagnoses: What causes it and what can be done about it?
  • Economics: What are the health and wider societal costs of HIV infection 
  • Travel associated HIV: What is its contribution to the UK epidemic? What can be done?

Theme 2: Combination Prevention: what works in preventing HIV. 

  • Tasp: Treatment as prevention and U = U
  • PrEP: What does the future hold and what is its potential impact?
  • HIV testing: The cornerstone of HIV prevention efforts
  • Behavioural interventions: Condom use and other behavioural interventions
  • Harm reduction: The role of harm reduction in HIV prevention
  • New prevention technologies: What are they and how do we plan for their introduction? 

Theme 3: Optimising HIV care services for the future

  • HIV care services: What does good look like for clinical and other care for People Living With HIV including allied services – mental health, dental health and other services
  • Managing complex needs: Improving HIV care support, care coordination with most complex needs
  • Tackling inequalities: Variation in clinical outcomes by treatment centres
  • Capacity: Retaining clinical capacity for health care workers to diagnoses, treat and manage HIV as the incidence declines
  • Sustainability: Sustainable funding for services and new prevention and treatment technologies

Theme 4: Opportunities for addressing the wider determinants of HIV transmission 

  • Politics: The importance of political leadership in the HIV response
  • Policy responses: What is the current HIV policy landscape and how can it be strengthened?
  • Partnerships: The role of partnerships in strengthening the HIV response
  • Public engagement: The role of campaigns and social marketing in HIV responses
  • Innovation: What can we learn from other sectors, wider structural approaches?

Theme 5: Community-specific considerations and approaches

  • Women: Women and HIV
  • Gay and bisexual men: What are the issues in the fifth decade of the epidemic
  • BAME communities: Developing culturally competent networks 
  • Youth: Young people and HIV
  • Trans: HIV and Trans communities
The written submission should be as brief and informative as possible. The submission should be provided via www.hivcommission.org.uk. Neither printed nor mailed submissions will be accepted by the commission. If you require additional support, please contact [email protected]

Submissions should not exceed 3,000 words and should reach the commission by 5pm on Friday 31st January 2020. 

The submission must be a stand-alone document. Complementary information can be submitted via links into the main submission. However, this information will only be available to members of the commission on request. Please include hyperlinks to any publication, studies, reviews, statistics, grey literature, measures or metrics that you feel will support the evidence provided. 

The commission is encouraging submission from all sectors of society, including: academics, civil society, charities, bodies that represent citizens and professionals, businesses of all sizes including start-ups, local government, health professionals, health and social care bodies, and others.  

The commission also encourages members of the public to participate, in particular people living with HIV. 

Please note an additional submission process aiming to capture lived experiences and stories will also be available at www.hivcommission.org.uk from December 2019.

All written submissions become property of the HIV Commission. All submissions from organisations will be published at www.hivcommission.org.uk. Once you have received acknowledgement that the evidence has been received, you may publicise or publish your evidence yourself, but in doing so you must indicate that it was prepared for the HIV Commission. Individual submissions will be reviewed and assessed on individual basis before publication. No detailed or demographic information will be published for individual submissions.

All personal contact details supplied to the commission will be removed from evidence before publication. However, personal contact details will be retained by the HIV Commission and used for specific purposes relating to the commission’s work, for instance to seek additional information or to send copies of the final report. 

If you wish to include private, confidential or commercially sensitive information in your submission, please contact [email protected] to discuss this. The commission will consider removing this information from the submission prior publication on the website. 

The commission is not obliged to accept your submission as evidence, nor to publish any or all of the submission even if it has been accepted as evidence. This may occur where a submission is very long or contains material which is inappropriate or not relevant.

Persons and organisations who submit written evidence, may be invited to join an evidence hearing. Evidence hearing sessions will take place across the country and will be documented on www.hivcommission.org.uk. Persons invited to participate in evidence hearings will be notified separately of the procedure to be followed and the topics likely to be discussed. 

This is a public call for evidence. Please bring it to the attention of other groups and individuals who may not have received this document directly.