To reach the 2030 target, it’s vital the Government embeds the rich information and analysis from the national HIV Commission to inform the Department’s HIV Action Plan. To be effective, and ‘worthy of its name’, it must include the following:
- Funding for opt-out HIV testing across the NHS – When an individual presents at A&E, registers at a GP practice, and the NHS otherwise takes a blood sample, a test for HIV should be routinely undertaken, unless the person chooses to opt-out. This is already standard practice within maternity units and has resulted in a near elimination of vertical transmission of HIV in the UK.
- Free at-home HIV testing should be available nationwide all year round – At present this is only the case during National HIV Testing Week and otherwise dependent on local authority provision.
- Pre-exposure prophylaxis (PrEP) availability beyond sexual health clinics – This drug is a game-changer in the fight against HIV but data from the NHS England PrEP Impact Trial showed only 4% of participants were not gay and bisexual men; that is despite heterosexual people accounting for nearly half of new HIV diagnoses. PrEP provision should be negotiated into the Core GP contract, available in pharmacies (via a Patient Group Direction). We need to raise awareness and increase access in all communities, but especially Black African communities, women, trans people and migrants, where awareness is currently lowest.
- A step change in targeted health promotion programmes – Additional resources for HIV prevention and HIV testing campaigns.
- Action to reduce late HIV diagnosis – In 2019, 42% of all new HIV diagnoses were made at a late stage. This rises to over 50% among Black African heterosexuals. Late diagnosis leads to worse health outcomes for individuals, potential additional onward transmissions, and avoidable costs to the NHS. These cases must all be investigated as serious incidents within the NHS to improve practice and support earlier diagnosis.
- A new campaign against HIV stigma – The Don’t Die of Ignorance campaign undoubtedly saved lives. However, it has also tainted public awareness and understanding of HIV in modern times. HIV is no longer a death sentence and now advances in medicine mean that 97% of those with HIV on treatment are virally suppressed or ‘undetectable’, which means they can’t pass the virus on. Ongoing stigma impacts people living with HIV, including in employment, their access to services and relationships. It remains a stubborn barrier to testing for HIV. As well as a new anti-stigma programme, it’s also vital new Relationships & Education lessons in England provide young people with accurate and up-to-date information about HIV.
- Mental health support available for those living with HIV – People living with HIV are twice as likely to experience poor mental health than the wider population, including depression and anxiety. Despite this, access to mental health support remains inconsistent and generic services do not suffice. All HIV clinics need access to a psychological or mental health professional within their multidisciplinary teams.
We’re delighted to have the support of a number of other organisations who back our call for an HIV Action Plan worthy of its name. If you would like to add your support, please get in contact.
Campaign in the news
- Chair of the Women & Equalities Select Committee, Caroline Nokes MP and Chief Executive of Terrence Higgins Trust, Ian Green in The Times Red Box launching the campaign [paywall].
- Brighton Kemptown MP, Lloyd Russell Moyle in Left Foot Forward on how to end new cases of HIV by 2030.
- Shadow Minister for Mental Health, Rosena Allin-Khan MP on why everyone living with HIV should be able to enjoy good mental health.
- Shadow Secretary of State for Health and Social Care, Jon Ashworth MP in Labour List on why Labour is in a hurry to end new cases of HIV by 2030.
- Coventry North West MP and member of the Health and Social Care Committee, Taiwo Owatemi, in Metro on why PrEP access needs to be urgently expanded.